welcome to

EASTBOURNE PROSTATE CANCER SUPPORT GROUP

PCaSO Eastbourne began in September 2002 and was set up in memory of H.K Hatfield primarily in order that those affected by prostate cancer would have an opportunity to meet and share their experiences.

Cancer experts speak, answer questions and enter into discussion at most meetings.

PCaSO - Prostate Cancer Network is a registered charity managed by and for men with prostate cancer, their families, friends and those who are interested in improving the care and support of those affected by this cancer.  PCaSO provides free and confidential help, support and information.  Helpline 0845 650 2555.

We would very much like to thank those people who have given their time and support to this local initiative.

everyone who has an association with prostate cancer is welcome at PCaSO Eastbourne meetings
for further details, contact Graham Hatfield on 01323 749258 or 737015 or graham.hatfield@btopenworld.com

EASTBOURNE PROSTATE CANCER SUPPORT GROUP

forthcoming meetings & events

PCaSO Eastbourne meetings are held in the Post Graduate Medical and Dental Centre, Eastbourne District General Hospital, Kings Drive, Eastbourne, East Sussex

12 November

Christmas lunch

14 January 2010

11 February 2010

11 March 2010

8 April 2010

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a Macmillan Cancer Support Helping You Help Others grant reimburses hospital car parking fees for those attending the PCaSO Eastbourne support group meetings. See press release.

 

coffee meetings for wives & partners   Chris Cutting writes: I would be pleased  to meet up with other wives or partners of men who have prostate cancer or have died from it. The aim to give each other support during a difficult and frightening time.   I see these meetings taking place monthly over a coffee, maybe at the coffee shop in Trinity Place Eastbourne, as Debbie Hatfield has given me some vouchers for that venue. The venue could be flexible depending on  the ideas of anyone  interested in getting together. Chris cuttingchris@btinternet.com

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EASTBOURNE PROSTATE CANCER SUPPORT GROUP

fundraising

PCaSO Eastbourne raised £7,727 to purchase a portable bladder scanner for Eastbourne District General Hospital.

Contributions were made by Gerry Bonnick, collection at EDGH, Noel & Jeannie, Dennis & Brenda, Bill & Carol Owens, Eileen Reddish, Westham Quiz night, Emily's collection, Seaford 3 Easter raffle, PSA Eastbourne raffles, Mrs J. M. Smith, Mr. G.J. Gillett, S. M. Warkup, Miss Pauline Brooks, Brighton Students Union, Brewers, Langney Sports Disco, John & Mary Carden, Chris Cutting and Sussex Masonic Charities.

Dawn Bamforth and children, Chris Cutting, John and Mary Carden with the portable bladder scanner

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PCaSO Eastbourne raised over £10,000 to purchase a robotic camera arm for laparascopic surgery at EDGH. To see a video of a prostatectomy using a robotic camera arm, CLICK HERE.

Sarah Slaughter made a donation from funds raised for charity by abseiling down the Congress Theatre, Eastbourne. A bucket collection at an Eastbourne Borough FC match raised £203.27. A quiz at the Westham Village Hall raised £282. Marks & Spencer plc contributed £246.05. £25 came from the East Sussex County Council's Chairman's discretionary account (Cllr Bob Lacey). £100 came from Alfred Honney Ltd (Paul Honney). £670 in memory of Mr Bert Hoaen. Sussex Masonic Charities.

presentation of the portable bladder scanner (L) and the robotic camera arm (R) to consultant Peter Rimington (C)
 

 

 

 

 

click on underlined words or phrases to see details or to send an email message

 

THE POSTATE CANCER CHARTER FOR ACTION Because men’s lives matter including PROGRESS UPDATE 2004 and see "Because Men Matter - The Case for Clinical Nurse Specialists in Prostate Cancer" (Prostate Cancer Charter for Action, 2007) Action on Transparency We call for an urgent interim report on the progress in meeting all of the targets highlighted in the NHS Prostate Cancer Plan, launched in September 2000. We believe that information sharing is vital for the future effective management of the disease and that only a national database on all aspects of incidence, treatment and outcomes can achieve the transparency demanded by the public and clarity for investment and planning. CLICK HERE FOR UPDATE Action on Public Awareness We call for the promised public awareness programme to be underway by autumn 2003. We would like to see an ongoing male-friendly health education campaign using popular media and increasing public awareness of the prostate and its function. The campaign should challenge the notion that prostate problems are an inevitable part of ageing to be endured rather than investigated, it should explain when men should take action, highlight risk factors (including ethnicity), and describe the role of the PSA blood test. CLICK HERE FOR UPDATE Action on Patient Care Men and those close to them need information and support to make informed choices about their treatment. Care should be co-ordinated using a multi disciplinary team approach. We call for evaluation and investment in decision making tools to compare all treatment options including active surveillance and participation in clinical trials. We also call for an audited programme of education on prostate cancer for primary care providers. CLICK HERE FOR UPDATE Action on Resources The costs of treating prostate cancer are set to rise, but we believe that they can be mitigated by prompt, targeted investment in the following three areas: trained prostate pathologists to cope with increased demand for diagnosis; specialist prostate cancer nurses to support both those affected and primary care providers; and fundamental research into reliable tests to identify men with prostate cancer, predict the cancer's aggressiveness and to provide individually tailored treatment. CLICK HERE FOR UPDATE Action on Partnership The voluntary sector can play a major part in raising public awareness and providing information to those affected by prostate cancer. We call for better collaboration and communication between the voluntary sector and the Government in the formulation of policy on prostate cancer and delivery of the Prostate Cancer Plan. CLICK HERE FOR UPDATE Prostate Cancer Charter for Action Signatories The Prostate Cancer Charity Prostate Research Campaign UK Orchid Cancer Appeal British Prostate Group Coalition against Prostate Cancer PcaSO (Prostate Cancer Support Organisation) Scottish Association of Prostate Cancer Support Groups Institute of Cancer Research Cancer Research UK Macmillan Cancer Relief Pro Cancer Research Fund Cancer BACUP Men's Health Forum TenovusBritish Association of Urological Surgeons British Urological Foundation British Association of Urological Nurses PROGRESS UPDATE 2004 Action on Transparency Call: we call for an urgent interim report on the progress in meeting all of the targets highlighted in the NHS Prostate Cancer Programme, launched in September 2000. Progress: agreement in principle by Professor Mike Richards for publication of progress report on NHS Prostate Cancer Programme (scheduled for November 2004). Call: we believe that information sharing is vital for the future effective management of the disease and that only a national database on all aspects of incidence, treatment and outcomes can achieve the transparency demanded by the public and clarity for investment and planning. Progress: partnership funding secured to establish the National Prostate Cancer Website — the Department of Health will contribute c£100,000, with the Charter signatories providing £50,000 over three years. Action on Public Awareness Call: we call for the promised public awareness programme to be underway by autumn 2003. Progress: agreement in principle by Department of Health to fund academic review of possible success criteria, best practice techniques and messages; scoping study underway; to be followed by a consensus conference and pilot public awareness campaign. Action on Patient Care Call: men and those close to them need information and support to make informed choices about their treatment. . . We call for evaluation and in vestment in decision making tools to compare all treatment options including active surveillance and participation in clinical trials. Progress: expert seminar on decision making tools to be held in May 2004; first tool to assist patient decisions in relation to prostate cancer to be developed and piloted in Autumn 2004. Call: Care should be co-ordinated using a multi disciplinary team approach. Progress: agreement in principle to launch multi-disciplinary training programme involving European experts for whole prostate cancer team. Department of Health exploring funding options; project to start in 2005. Action on Patient Care (continued) Call: an audited programme of education on prostate cancer for primary care providers. Progress: evaluation of the Prostate Cancer Risk Management Programme expected to be released in time for ‘4 year progress report.’ Action on Resources Call: targeted investment in the following three areas: trained prostate pathologists to cope with increased demand for diagnosis; specialist prostate cancer nurses to support both those affected and primary care providers. Progress: PCAG has advised Professor Mike Richards on resource requirements ahead of Spending Review 2004 discussions. Funding has been secured for initiatives such as the Website. Call: fundamental research into reliable tests to identify men with prostate cancer, predict the cancer’s aggressiveness and to provide individually tailored treatment. Progress: continuation of £4.2million per annum funding for research related to prostate cancer confirmed providing suitable proposals are put forward. Action on Partnership Call: better collaboration and communication between the voluntary sector and the Government in the formulation of policy on prostate cancer and delivery of the Prostate Cancer Plan. Progress: the Prostate Cancer Advisory Group (PCAG), comprising representatives from the voluntary sector, professions and the Department of Health, established to help advise on and develop future policy. The PCAG is the first group of its kind and the model has now been replicated in lung and bowel cancer.   The Prostate Cancer Charter for Action has been signed by 21 organisations with an interest in prostate cancer. It is supported by all the major political parties and over 250 parliamentarians in Westminster, Scotland and Wales

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